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Rich Z 05-13-2022 11:38 PM

Connie
 
Guess I might as well mention this, because it might impact the amount of time and effort I can put into this site for a while.

Connie was diagnosed with ovarian cancer. She had surgery 04-28-2022 (I think, my brain really isn't working all that well lately). And she had her first chemo treatment on 05-11-2022.

So I am putting all my effort into helping and supporting her to the absolute best of my ability. If that means the websites go away, then so be it. Not much happening here anyway, but at least I have a couple of people who stop in here now and again and make their presence known.

Personally, my world has been turned completely upside down. I am praying she pulls through this, because quite honestly, if she doesn't I really don't know what I will do without her.

85vette 05-14-2022 08:57 AM

So sorry to hear this. I can only imagine what the two of you are going through. You are in our prayers my friend.

Rich Z 05-14-2022 09:30 PM

Yeah, this made EVERYTHING else far down on the priority list now.

donzee 05-23-2022 09:16 AM

Wow Rich, I just saw this post, hoping for a full recovery for Connie.

Rich Z 05-23-2022 11:52 PM

Thank you.

Hoping for the best. Praying a lot too.

Second chemo treatment will be on 06-01. Since she only got one of the three drugs that first time, I think this one might be much harder on her. She didn't have much in the way of side effects at all from that first one, so maybe she will be one of the lucky ones that doesn't suffer much from the side effects of chemo. Certainly got my fingers crossed hoping for that one.

At least she is healing up well from the surgery. It would have been really bad had that first chemo treatment hit her hard while she was still trying to recover from the surgery.

But I am here for her, no matter what. There isn't anything I wouldn't do to help her.

Rich Z 05-26-2022 04:43 PM

BTW, if anyone is interested, I post more about this on my main website.

https://www.faunaclassifieds.com/for...d.php?t=785785

I can't see any reason to post the details everywhere.

donzee 05-26-2022 09:38 PM

Wow Rich, you and Connie have had a workout, take care of yourselves.

Rich Z 05-26-2022 10:45 PM

Yeah, and this is just the beginning...

Rich Z 07-11-2022 10:15 PM

Quote:

Originally Posted by Rich Z (Post 217460)
Yeah, and this is just the beginning...

If I only knew when I posted the above......:ack2:

Oh yeah, I forgot to mention. In case this wasn't enough of a load for Connie and I to be carrying, I had a heart attack on Memorial Day. Rushed to the hospital in an ambulance, went into emergency surgery and had a stent placed in my right coronary artery. Cardiologist told me it was nearly 100% blocked and I am lucky to still be alive. The left coronary artery is 60% blocked, so I may be going through this again soon for a stent to be placed in that artery.

The Sunday before I was putting in a post for the new mailbox, and I guess sinking that post into the ground pushed me over the edge. Darn miracle I didn't have the heart attack while working, as I would have been laying out down there at the end of the driveway for who knows how long. As it was, Connie got right on the phone Monday morning and had emergency services there REALLY quickly. Which quite likely saved my life.

So far I am feeling OK. Was pretty tired for a while and the slightest effort would exhaust me, but that seems to have passed.

Connie seems to be doing well with the chemo treatments. At least better than I had expected. The tumor marker the oncologist has been monitoring started above 9,000, then dropped to 900 something, and the latest one on 06-29 for 578. So I am REAL hopeful that is a good sign that she will be able to pull through this.

donzee 07-12-2022 10:14 AM

Good news, hope the progress continues !

85vette 07-12-2022 06:56 PM

That's great news! Prayers for a full and fast recovery! And you! Take care of yourself!

Rich Z 07-16-2022 11:11 AM

I'll be going in next week to have that other stent put into my left coronary artery. When we went to see my cardiologist this past week, he did everything but yell out to me that it really needs to be done SOON.

85vette 07-17-2022 08:13 PM

Do it!

Rich Z 07-17-2022 11:12 PM

Something else the cardiologist/surgeon told me.

Only 50 percent of the patients with the type of heart attack I had survive the ambulance trip to the hospital. Then of those that get to the cath lab and have the stent put in, some don't make it within the next 48 hours. Of those that survive that, some don't survive the next 30 days.

:face_palm_02:

He said I should consider myself as a "Heart Attack Survivor". Not everyone gets to wear that T-shirt, apparently.

Connie wants me to get that other stent put in REAL SOON, because she is afraid that although she is feeling relatively OK now, she might not feel that way with the cumulative side effects from the chemo treatments over the next couple of months. So right now she can take care of ME when I get out of the hospital. If I were to have another heart attack sometime over the next couple of months (which the cardiologist said was certainly a possibility), things could turn out quite differently.

So yeah, everyone seems to think getting that stent put in this week is a good idea.. Me? Heck, I can think of a LOT of things I would rather do than having someone poking around in my heart.

85vette 07-18-2022 07:44 AM

Hey, it’s a lot better than option number two! Prayers sent for you both.

Rich Z 07-23-2022 12:52 PM

Well, had a stent put into my left coronary artery this past Tuesday. Surgeon said it was 70% blocked before he put in the stent. So I guess my left and right coronary arteries are now at 100%. But for now, I have to take it easy for a while, I suppose. But I can't let up taking care of Connie.

She has been feeling pretty well lately, but is due for the next chemo treatment this upcoming week. But she certainly isn't running on all cylinders. She got word that the "tumor markers" they monitor in her blood rests have dropped from 578 on 06-29 to 333 this past week, so that is definitely moving in the right direction. Sure would like to see that number reach zero as soon as possible.

85vette 07-24-2022 10:41 PM

That’s pretty darned good news for both of you in my opinion!

navy2kcoupe 07-25-2022 08:17 PM

DAMN.....
 
Rich, just logged on for the first time in quite awhile and saw this. Major League kick in the sack for you! I'm hoping that the outcome for both of you is as positive as it gets. I've had 2 stents.....1 in 2013 for an 85% blockage, and one in 2020 that they found while doing a stress echo. I had no idea that anything was wrong on the second one. Dotty and I will be saying a few prayers for the 2 of you. Keep us updated.
Andy Anderson

Rich Z 07-25-2022 10:32 PM

Thanks Andy.

Had another kick to the balls today. Our submersible water pump died. I did all the diagnostics to rule out everything else, but no go for an easy fix. Bad pump by ruling out everything else. The tank and the well casing going into the ground is quite distant from the house, because it was pre-existing when we bought the property. Which was 30 some years ago. So now it is pretty much in the woods. Fortunately I did clear some brush away from some areas close by, but still a lot to go when I got a round tuit. Got a guy coming out tomorrow to replace the pump, but he says he needs to be able to get his crane with 5 to 8 ft. of the well. That is going to be a big problem with how it is right now, unless his crane is on a tank.

I asked a friend to bring a tractor over tomorrow early AM, to cut a path from our driveway back to the pump. I also have to be manning the pole saw because a lot of yaupon sapplings along with grape vines are overhanging the pump and there is no way the guy would be able to get to the pipe to pull out that pump straight up. So I have to be manning the pole saw and the chainsaw to cut all that away. Not sure what my cardiologist would say about me doing this sort of activity less than a week from the surgery, but I really don't have any choice. Hopefully I won't end up in the ER tomorrow with another heart incident. Connie sure as hell can't be doing it, so I'm the guy holding the short straw.

Weather forecast is saying rain after 2pm, so hopefully they aren't wrong and I wind up doing that work in the rain too. They say that what doesn't kill you makes you stronger. I am flipping a coin on this one. Could be it will be both if I die and am pretty strong smelling because I didn't get that shower I was planning on tonight. Probably not the optimum thing to be doing for my recovery period. People tell me I need to relax, but how can I when stuff like this pops up?


Now really sure what I did to piss off Murphy and his Gawd awful laws.

Rich Z 07-28-2022 10:15 PM

My friend, Rickey, did most of the work with his tractor, but I was still out there with the extended hedge trimmer cutting grape vines over my head and topping off some tall saplings that were overhanging the well. I didn't want Rickey to get a grape vine wrapped around the well tank and pull it over accidentally. Not sure my cardiologist would have approved of my holding that thing up over my head for extended periods, but I had to do what I had to do. Ricky was pushing over and uprooting small trees and brush, and had a really good path going to the well. I got pretty winded here and there and had to take several breaks to sit down for a spell. Glad Connie wasn't down there watching or she would have had her own heart attack watching me working.

Oh, it turned out that the pump itself wasn't bad. One of the wires going to it had broken. The well guys said it was because the piping was PVC instead of steel, and the flexing from the torque of the pump motor caused the wires to stretch because of the "give" of the PVC. So they just put in the steel piping, rewired the motor, and called it a day. They checked the windings on the pump and they looked right on the money, so they didn't feel replacing the pump motor was needed. They said the pump is an excellent brand and they see them lasting 20 years or so. It's been 10 to 12 on this one. Way things are going, I'm not expecting to have to worry about this problem 10 years from now.

But it was nice of that company (Lightning Quick Well Repair) to not try to take advantage of me and sell me a new (and expensive) submersible pump. Refreshing to run into an ethical company now and again.

So that was a pretty stressful day. And to top it off, they JUST got done wiring the pump and control box before it started to rain. I had to help Rickey guide his trailer with the tractor on it out of the driveway, and it was raining cats and dogs then. So I got soaked to the bone. Had to strip off all my wet clothes on the porch as I couldn't walk into the house with water just running off of me. So like I said, pretty darn stressful day. I guess this could be considered as a heart test after my surgeries.

But at least I haven't had another heart attack afterwards (yet), so hopefully no damage done. I sure hope I don't have to do something like that anytime soon, as I would like think I am recovering from all this without doing something that will cause long term damage. As it is, I think my earlier heart attack might have caused some damage to my heart, but my cardiologist has been noncommittal when I asked him about it. I have another appointment with him in a couple of weeks, so I am going to press him about it. I'm a big boy now, so just level with me. I tend to work hard doing yard work and I really need to know if I am skating on real thin ice now.

Connie had another chemo treatment yesterday and we had to run back to the oncology facility this afternoon so she can get a shot that is supposed to help raise her white blood cell count after the chemo treatment. So she is going to be taking it easy for a few days as the side effects knock her down a bit. Luckily she isn't having severe effects, but it is enough for her to just not feel all that spiffy. So I try to encourage her to take it easy and sleep as much as she can to pass the time that way till things subside.

Can't wait to see what else Murphy has waiting for us....

navy2kcoupe 11-12-2022 10:55 AM

Well................now it's my turn!
September 19th I took the trash out to the street to be picked up the next day. It felt like I pulled some pectoral muscles, but the pain went away quickly and I didn't think anymore about it. Then on Friday the 23, I was vacuuming the house and noticed the pain again. Had lunch with Dotty, and after lunch was done, I asked her to take me to the hospital because it felt like I needed another stent.
We went to Milton hospital, where I was admitted for observation and taken to my room. I had to go to the bathroom, so I got out of bed, went to the bathroom, came back to my bed, and bent over to unlace my sneakers. Got a helluva chest pain that also went down my left arm and numbed the 2 smallest fingers. I had an idea of what was going on, so I popped a nitroglycerin tablet, but it didn't seem to ease the pain, so I hit the call button. They put me in ICU with a nitro IV drip and tried to arrange an ambulance to get me to Beth Israel Hospital in Boston, but none were available for at least 7 hours and by that time Beth Israel had given up my bed, and were not taking anymore patients because they were full. Had to spend the weekend at Milton on a nitro drip till a bed opened up at Beth Israel.
Got to Beth Israel on Monday the 26th and went right to the Cath lab. They did a heart catherization on me, but did NOT insert any stents. Met with the cardiac team and was told that I had 3 blockages, and that none of them qualified for a stent. Bottom line.......open heart surgery for a 3 vessel bypass. Milton hospital had given me plavix as a blood thinner, and Beth Israel had to wait for that to work it's way out of my body before they would operate. Had the operation on September 29, and left the hospital on Wednesday October 6.
Got home, and have been recovering here since then. Getting better every day, but I would advise anyone to alter their lifestyle to prevent this from happening. The first 3 or 4 days after surgery ARE A BITCH! I've got an 8 inch scar on my chest, scars on both legs, and a bunch of miscellaneous little scars and scabs all over my chest. I was told that the episode at Milton hospital was a heart attack, but that it was mild and didn't do any damage to the heart itself. Looks like I dodged the big bullet myself!
So, how are you and Connie doing? I'm hoping that both of you are recovering successfully, and doing well. I'm pretty sure that getting old is NOT for the poor, or faint of heart! Heading to Florida will be delayed this year, till I get this behind me.
Andy

Rich Z 11-12-2022 12:48 PM

Andy,

No, that doesn't sound like fun at all. Honestly I was VERY worried about my second stent, as I was still on blood thinner and there was no mention of my stopping it prior to the stent insertion. I was scared to death that my arteries had been weakened (based on how easily I was getting bruised) and the artery was going to burst when they put in that stent. Which would have meant opening me up like a big clam shell, in a race against time before I bled out. There is nothing about heart surgery that even hints at being attractive and fun.

Hope you are going better, and will heal quickly and completely.

I seem to be doing OK. I wanted my cardiologist to cut back the dose on that Prasugrel blood thinner I am taking, but he was resistant to the idea. So I started cutting the tablets in half and taking only 5mg per day instead of 10. Until I found out that cutting the tablets was not recommended. Could not find any reason why it wasn't recommended, but thinking that I shouldn't buck fate, I stopped that practice. But I started taking the pill in the evening instead of the morning, thinking that the drug would dissipate somewhat over night, and during the day when I would be most likely the expose myself to bruising, the bruises wouldn't be as bad. I think it did help somewhat, but still, I bruise 1000% more easily than I used to.

Connie has switched to a different oncologist. She just was not comfortable with her first one. The first oncologist actually stopped treatments, and wanted to put Connie on Doxil, which is a pretty harsh chemo drug. Seemed like she was dragging her feet, wanting Connie to get an OK from her cardiologist, and it wound up going on two months with nothing happening. Connie was scared to death over what she had read about Doxil, so she wanted a second opinion from another oncologist. We actually tried to change oncologists at the original place (Florida Cancer Specialists) and it happened, but only for about a day, when somehow we got switched back. No satisfactory explanation for that from anyone. So we went elsewhere.

Connie and the new gynecological oncologist at Tallahassee Memorial Cancer Center seemed to mesh really well. Like two old friends talking. So instead of just a second opinion, Connie decided to just switch over. The new oncologist wanted Connie to finish up the cycles of the original drugs she was getting at FCS, so she is in the process of doing that now. Connie's last blood test showing the CA125 tumor marker score had risen a bit, after a consistent downward trend, so that is concerning. The new oncologist told us that this was likely to happen, because other factors can influence that score, but still, it did take a lot of wind out of our sails things things were looking really good. The last CT scan, taken in August (I think) didn't show any new developing tumors, so that was a good sign. I think there will be another scan scheduled sometime in December, so that will be "pins and needles" time waiting for the results.

Oh yeah, the new oncologist was shocked that the original oncologist hadn't put in a port for the chemo drug infusions. Those drugs can really mess up veins, and honestly getting yet another IV line put in every time Connie would go in for infusion was extremely stressful for her. So Connie decided to have that port put in, even at this late date. That was a bit painful and uncomfortable recovering from that minor surgery, but it has healed over pretty well now, but Connie says it still feels a bit uncomfortable. But at least it makes it much easier for the infusions.

Connie has been feeling mostly OK, under the circumstances. She has lost much of her hair, even using that DigniCap thing that is supposed to help. Probably she would be completely bald right now without it, so I guess it did help. Side effects haven't been as bad as we had thought. Very little nausea, probably from the anti-nausea drugs they give her. But she still gets an over all "just not feeling well" for a few days after the chemo. She is getting chemo every week this month, so there isn't going to be much down time for her. She is trying to keep food in her, even though her appetite will come and go. She is down to 105 lbs right now, but fluctuates up to 110 sometimes.

I got a prescription for Diazepam (Valium) from my Primary Care Physician back in May (before she left the network and struck out on her own) to help me get through the periods when Connie not feeling well puts cuts into my soul. I have to hold it together to be there to support and help her, so I can't be melting down over this. Honestly, though, it is really, REALLY tough.

navy2kcoupe 11-12-2022 07:39 PM

Rich, glad you seem to be on the mend, and happy for Connie that she found an oncologist that she's comfortable with. You never can tell where help will come from. I was having trouble keeping my blood sugar under control, and on a whim, decided to talk to a pharmacist at the VA. Just like Connie, I felt really comfortable with her, and with her help we're getting it under control. Dot and I are keeping her in our prayers, and tell her to keep moving forward and NEVER give up!
Andy

85vette 11-12-2022 07:58 PM

Prayers to all of you. Knock on wood, my health has been pretty good for a guy about to turn 66 next month. But it certainly appears that getting old can be an expensive endeavor.

navy2kcoupe 11-12-2022 08:05 PM

Rich, just think how bad it would be if you still owned the reptile business! At least you're retired and can devote some serious time to Connie and yourself.
Andy

Rich Z 11-12-2022 08:16 PM

Oh, that would have been VERY bad. I probably would have had the heart attack sooner, and more extensive. So every animal we had would have died because Connie certainly couldn't have taken up the slack. I would have had to just burn down the buildings, because I would have never been able to get the stench from the dead animals out of them.

Semi funny thing about my heart attack. When Connie got diagnosed with cancer, I prayed to God to take whatever he wanted from me to help her get through this. On the way to the hospital in the ambulance, I was thinking "Well God, you certainly didn't wait long to take me up on my offer. So now it is up to you to keep your end of the bargain."

Rich Z 04-09-2023 06:22 PM

Quote:

Originally Posted by 85vette (Post 219262)
It's just a reminder that everything on God's Green Earth will pass eventually. Everything living was created to die. Just another page to be turned.

With Connie having cancer, this is something my mind just cannot absorb right now. I suppose when people marry and take the vow "until death do us part" no one really stops and thinks what that really and truly means.

85vette 04-09-2023 08:33 PM

Very true Rich. None of us give much thought to dying it seems. We're all too busy living. And I still wonder who that old guy is looking back at me in the mirror in the mornings. I do know that it happened a lot faster than I expected it to. And I don't expect to get out of this world alive.

My best friend from my Navy days died two years ago at the age of 62. Another Sailor that I know just lost his wife. She was 60. A guy I worked with in the 80's passed away in 2019 at 59. I'm not liking this either my friend.

I will say, we better be right with our Savior, Jesus Christ. I hope that you two are believers. The other option is not good.

Rich Z 04-10-2023 02:03 AM

Well, definitely getting off topic about rain, but what the heck. Not like it is going to make much difference in this forum.

A few months after Connie's diagnosis, I was walking from one of the buildings towards the carport, trying to talk to God. I was angry and distraught. Why Connie? The world will be a much darker and colder place without her in it. Of all the people in the world, SHE definitely does not deserve to have this happen to her. I was nearly to the carport when suddenly I heard a voice. It was like no voice I have ever heard before, and I can't even recreate that voice in my mind again. I was every voice I have ever heard rolled up into one. And that voice said to me as clear as a bell, "Trust me, Rich." I just stopped dead in my tracks, wondering if I actually heard what I heard or was really losing my mind.

Not long afterwards Connie and I were taking a walk up the road and a pastor for the church on Zion Hill Rd. was outside cleaning up the area. We stopped and talked with him for a while, and eventually he took us into the church to show us around. While we were standing in there, the front door to the church suddenly swung open. Now there wasn't any sort of breeze, and even so, none of the other doors or windows were open. The pastor's eyes widened a bit when I said "Come on in, God." We talked about Connie's situation, and he asked if he could pray for us. I have to admit that I had a lot of tears in my eyes then.....

So, signs or just my imagination making something out of nothing?

Oh yeah, right after Connie's diagnosis I really, REALLY prayed to God to help her. I told him I would give from myself whatever it takes to give health back to her. What EVER it takes, I would give. So when I had my heart attack, I thought he took me seriously. Matter of fact, on the way to the hospital in the ambulance, I did say to him, "You didn't waste any time taking me up on my offer, now did you?" Had a lot of people tell me I should have died that day. So God extending a hand to me again?

Interestingly enough, I actually did have God step in to give me a helping hand a long while back. I had just gotten my driver's license and had my Mom's Bonneville out for a drive. I was making a left hand turn into another road, going a little faster than I should, when I heard someone beep their horn. Like an idiot, I thought someone was beeping at me, so I looked around to see if I could tell who it was. When I turned my attention back to where the car I was driving was heading, all I saw in front of me was the back end of a parked car. I had swung too wide and was headed for a collision. No way I could avoid it, and I didn't even hit the brake or try to swerve left or right. I just clenched the steering wheel as tight as I could, closed my eyes and thought "Mom is going to KILL me!" And then, nothing. I eventually opened my eyes and I was just drifting on the road I had turned onto, well past that parked car. I had to pull over to the side of the road I was shaking so badly. I did not understand what had just happened. There is no way possible I could have avoided hitting that parked car, so *someone* stepped in and plucked me out of what was going to happen.

So of course, I have to ask the question, "Why me?" I am no one special. Why would God be looking out for me? Why would God tell me to trust him in reference to Connie? Well, I do believe Connie is special and perhaps that I why God has stepped in a few times in my life. I am supposed to be here for her.

So as to being "believers", not sure what that actually means. Sure, I believe in God, and I know Connie does too. When I told her about God speaking to me, she looked at me in awe. She doesn't doubt for an instant that it actually took place. But for the life of me I cannot understand why would be special in his eyes, when there are so many other people who have died, or lost everything, and surely they prayed to God just as hard, perhaps MUCH harder, than we have for his help. So where my belief falters, is in trying to understand why God would have his hand on my shoulder when I can't see where I would be worthy of that much attention.

85vette 04-10-2023 05:10 PM

I know He has a plan for each of us, those who believe. And when I say believe, I'm talking about God's Word, The Holy Bible. Many people believe there is a God. Some believe there are more than one God.

But I am a Christian and I believe that Jesus was sent to earth as a man to die on the cross for our sins. And that He arose from the grave and ascended to Heaven with the promise that He would return and take those that believe in Him to Heaven.

It says in the Bible in John 14:6 that, “Jesus saith unto him, I am the way, the truth, and the life: no man cometh unto the Father, but by me.”

This is what many have an issue with. So many, while they claim to believe in God, take issue with the part that tells us to follow the teachings of Jesus Christ. Many deny that He lives. And some other religions would have you believe that He was just a man. Whereas in reality, He was part of the Trinity. Father, Son and Holy Ghost.

The bottom line is that if you don't believe in Christ Jesus, you don't go to Heaven.

The Bible tells us that God loves each and every one of us, despite our shortcomings. Why some die and some are spared, only He knows. Many have said they don't believe in God just for this reason. They don't know how a loving God could let bad things happen to good people. But our thoughts are not His thoughts. Perhaps one day we will know why things have happened the way they have.

I have had discussions about this. And I have to say that this is God's battle. Not mine. It is His word that tells of this. Not mine. I do not understand all of the Holy Bible. But I do believe it.

I'm not called to preach, but as a Christian, I am obligated to tell the good news. Because, if you confess with your mouth that Jesus is Lord and believe in your heart that God raised him from the dead, you will be saved. For with the heart one believes and is justified, and with the mouth one confesses and is saved. Romans 10:9,10

Rich Z 04-10-2023 07:22 PM

I have had my fair share of such conversations too.

In reference to Jesus Christ, the strongest argument I can come up with in favor of him being a real person/event is that SOMETHING so extraordinary had to have happened at the time period between 1 B.C. and 1 A.D. such that calendars were forcibly reset to ZERO to commemorate that person/event. What other person or event in all of known history had that same effect on humanity?

Something very notable to the extreme certainly happened at that time.

85vette 04-11-2023 08:56 AM

So how is Connie doing? Has she responded to the treatment?

85vette 04-11-2023 08:57 AM

If you want to move this conversation over to the other post I’ll understand.

Rich Z 04-11-2023 02:40 PM

Quote:

Originally Posted by 85vette (Post 219282)
If you want to move this conversation over to the other post I’ll understand.

Done.

Rich Z 04-11-2023 02:58 PM

Quote:

Originally Posted by 85vette (Post 219281)
So how is Connie doing? Has she responded to the treatment?

Well, that would be a yes and a no. One of the markers they use for ovarian cancer is the CA 125 blood test. During actual chemo, the number was dropping rapidly. Then when she went off of two of the drugs and still remained on the Avastin as a "maintenance" drug, the number is climbing back up again.

  • 9000+ - May, 2022
  • 984 - 06/16/2022
  • 579 - 06/29/2022
  • 335 - 07/20/2022
  • 211 - 08/10/2022
  • 154 - 09/20/2022
  • 333 - 10/31/2022
  • 146 - 11/28/2022
  • 99 - 01/04/2023
  • 64.7 - 01/17/2023
  • 82.7 - 02/09/2023
  • 157.3 - 03/06/2023
  • 410.1 - 03/27/2023

A "normal" reading is between 0 and 35 or so.

In a meeting with Connie's oncologist (Dr. Stephens), she seemed to be pretty positive. She noted that Connie's CA 125 number was up (the last reading she had was from 03-06 since she didn't have the number from the 03-27 test yet). She said it is disappointing, but there are a lot of things that can affect that reading. I asked her what exactly that CA 125 is an indication of, since calling it a "tumor marker" sure makes it sound ominous. She said it was actually a measure of peritoneal irritation. The peritoneum (for when I look back on this and can't remember) is the lining of the abdominal cavity. Yeah, cancer can cause this number to rise, but so can anything else that might cause inflammation. I guess inflammation would not be a good thing, no matter what is causing it, though. But Dr. Stephens didn't seem real concerned about it. She did do a physical exam of Connie, and said everything seemed just fine with that.

On the positive side, physical exams are not showing any tumor formation, nor have the last CT scans Connie has had. Connie also had an echocardiogram of her heart done recently, and the tech remembered Connie and the problems she was having with fluid building up around her right lung. So he checked that out and said there was no fluid buildup to be seen.

She seems to be maintaining a weight of between 113 and 114 after dropping down to around 108 or so in the thick of the chemotherapy. So that seems to be a good sign. She seems to be tired quite often, but from what I have read, that is a long lasting aftereffect of chemo therapy. She never really lost all of her hair, and what she did lose seems to be coming back now. Some days she will tell me that she feels completely normal.

But we have both read extensively about ovarian cancer, especially the stage 4 version, and know that Connie is a LONG LONG way from being out of the woods. And is known to recur, and when it does, it can be pretty harsh.

So I pray a lot.

She has an appointment down at Moffitt Cancer Center in May. She likes her current oncologist here at Tallahassee Memorial Cancer Center, but when we went to a local cancer support group meeting, everyone there emphatically told her that going to Moffitt for some opinions would be a real good thing to do. So we are following that advice.

Honestly, after that fiasco (ongoing) with the COVID vaccine and the way the FDA and pharmaceutical companies handled the alternate information about therapeutic drugs, I have little to no faith in them nor doctors who dance solely to the tune they play. So Connie and I spend a lot of time reading about alternatives. Admittedly there is likely a lot of BS and snake oil bantered about, but are willing to try to read through the chaff to see if there is actually some wheat kernels there.

So I guess we are both pretty much just walking on the knife edge of life these days. Very difficult to look at the future without getting sucked down into that black hole you know is lurking there.

85vette 04-11-2023 07:29 PM

I'll keep you both in my prayers also Rich. But I'm glad she's having good days and that the news looks to be good for the most part.

The internet used to be a great source for information but as of late it seems that there's more opinion posted than fact. Especially when it comes to health issues. And when you search for something specific then you get bombarded with ads and junk about that particular subject. And I swear my phone hears my conversations and links that with my computer!

I really long for the good old days, before technology took over. But with the advent of AI I'm afraid it's only going to get worse.

But certainly exhaust all options that you can. Have you looked to the Mayo Clinic for any help? My brother's father in law is an anesthesiologist in Atlanta and he speaks very highly of them.



https://www.mayoclinic.org/diseases-...c/mac-20375952

Rich Z 05-30-2023 01:50 PM

Well, I made it through the 1 year anniversary of my heart attack last year on this date. I guess that is a good sign? :shrug01:

Connie had her one year anniversary from her cancer diagnosis on 04-27. That number "427" used to mean something entirely different to me. :(

85vette 05-31-2023 06:07 AM

Twenty years this year since I found I had Melanoma. Or as I say, my wife saved my life. She noticed an irregular area on my back and made me go to a dermatologist. Thankful for every day!

Congratulations on your anniversaries!

Rich Z 11-06-2023 09:17 PM

Been a long while since I made an update.

Short answer is, my wife and best friend of 45 years is dying. Despite the mainstream chemo treatments, despite the alternative drugs we were trying, despite her trip to Tijuana Mexico to an alternative treatment facility called Oasis Of Hope, and despite the hardest and longest praying I have ever done in my life.

She is now under Hospice care. This past Friday the hospice nurse said that based on similar cases she has seen, Connie would likely pass away within 2 weeks.

Now she is bed ridden in a hospital bed we have in the family room in our home. Both of her sisters are here to help out. Thank goodness, because I couldn't do this sort of care alone. She is obviously fading fast, and her speech is becoming almost unintelligible. None of us have had any unbroken sleep for a while now, because it takes all three of us to get Connie out of bed and to the port-a-potty and back again. Her legs have gotten very weak and she has difficulty maintaining her balance. She would definitely fall and hurt herself without our assistance.

I am a crushed and shattered man. She was my entire world. I went to my PCP doctor last week and got prescribed some medication to help get me through this (hopefully). I already had valium that was prescribed by an earlier doctor, which helped take the edge off of things a LOT of times, but this is getting REALLY heavy now. The stuff I am taking is supposed to take a couple of weeks to really kick in, so I am hoping it kicks in before I just lose my mind.

I don't have a single solitary clue about what I will do when (if? Still hope for a miracle.) she dies. A very VERY big part of me will die too.

85vette 11-07-2023 07:03 PM

The time comes when we all have to face the reality of death. Whether it be friends or family. It's certainly not easy nor something any of us care to face. And each of us deals with it in our own way. Losing a spouse is a life changing event. I do not look forward to that day. I don't know what I would do without my wife. Seriously. She has been my everything for over 30 years. Honestly though, if it comes down to it, I pray that she would go first though. As I don't want for her to have to deal with this world that we are now living in by herself. I would prefer to lose her rather than worry about how she would have to handle what the world has to throw at her without me to protect her.
And we have both accepted Jesus Christ as our Savior and by the Grace of God will meet again in Heaven. This is the best any of us can hope for. This world holds nothing for us. Christ is quite literally our only Hope. I pray that you and Connie have accepted Jesus as your Savior my friend. All you have to do is believe. I've seen enough in my life to know that He is real. Many times over.


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